Alese Coco's Journey through Hodgkins Disease

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Wednesday, May 18, 2005

Confused...

Last week when I had my PET/CT Scan my doctors told me they were alarmed by the report that one of the lymph nodes had
grown significantly in my chest. In every scan I've ever had the size of the lymph nodes are reported in centimeter (cm) for some reason the radiologist in this last scan reported some in millimeters (mm) and others in centimeters. The thought was that this particular lymph node in my chest had grown from the size of grape to the size of small zucchini in a short period of time. However, this was not consistent that most of the other lymph nodes had shrunk or diminished.
In short, the report had everyone confused.



After careful reexamination of the PET and C/T film, the lymph node was millimeters not centimeters, the node has grown slightly, but remains in the area of margin for error. I'm going to continue on the PDX trial and I'll be staying in New York. Thank God the use of conventional chemotherapy is off the table.



A few weeks after the PDX trail is concluded they'll scan me again, if growth continues to diminish or stabilize at their current size, this trail is considered successful. The good news is that I'll be able to continue taking PDX even though it's not approved by the FDA. That's the great thing about clinical trails; because I participated in the trail I can continue using the drug.



Fight 2 Win,
-Alese

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