Alese Coco's Journey through Hodgkins Disease

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Saturday, February 26, 2005

Back To Square One...

I'm on my way back to New York; we're actually flying over Aspen right now. I've been in California since Tuesday afternoon, my visit was supposed to be a little longer, but, when the results of my PET scan came back, my plans were cut short. The remainder of the week seemed to be filled with calls from and to Sloan Kettering to arrange times for the next battery of tests; which just breaks down to blood tests and barium. They have flavored barium now- which is even worse, because it’s already like a radioactive milkshake and then add banana’s on top of that… ‘nuf said.

On Monday, February 28th, I am going to meet with my doctors and choose a new clinical trial. Please pray for wisdom on my part and the doctor’s part that we will make the best possible choice.

On a brighter note... my birthday is coming up! I have a confession; I am still a nine year old kid at heart. I still to this day get all giddy about a month before the actual date, and it’s more like a birth month than a birth date. Which I take as a good thing, because it’s a sign that I’m still young, and I still look forward to getting a little older. I have plans on my birthday to wear a tiara, drink Martinelli’s and watch The Little Mermaid, lol. The day after however, I have plans to go see Maroon 5- my Parents got me tickets, and I cannot wait!

Praying for God's continued strength,
-Alese

Tuesday, February 22, 2005

The PET Scan Results Came Back…

I received the results of my PET scan and CT scan this afternoon and it was not the news that I wanted to hear. I’ve had growth in several nodes.

Dr. O’Conner called my father this afternoon and they went over the results. I was supposed to see Dr. Harowitz on February 28th for a check up and blood work. Instead, I’m seeing Dr. O’Conner and we’re going over different clinical trials in which I can participate.

Although this is disappointing news, I understand these are clinical trials and there are going to be hits and misses. I still have lots of opportunities of treatment available.

I request your continued prayers.


Fighting 2 Win,

-Alese

Sunday, February 13, 2005

In The Wait Mode...

Although I feel well and I’m doing good! I’m in the wait mode; I’m still receiving weekly blood draws, sometimes a few draws a week. However, any further treatment is on hold until My PET scan on the 21st.

Ever since my stem cell transplant two years ago, my platelets have never been over 85 thousand, this last blood draw they were 125 thousand. I’m still below the low normal level of 150 thousand; normal is between 150 and 400 thousand. The fact that they’re going up is a good thing.

Monday, February 07, 2005

Back To The East Coast...

This past week has been a whirlwind. I was lucky enough to be able to come home for a week; enjoy California weather and a great night of comedy. I don’t think I’ve ever laughed so hard in my life. It was great to catch up with so many friends who I haven’t seen in the past several months, and put faces with names of people who written me. Seeing everyone there was magical, I was floored at how packed the Comedy & Magic Club was. Thank you all for taking the time support me, I am so very blessed to have each and every one of you in my life. I want to thank Mike Lacey for his warmth, generosity and willingness to help. Evan, thank you, you’re absolutely hilarious.
My Dad and I flew back to the East Coast on Thursday morning… We had a layover in Nebraska, and I’ve never been there before, so it was quite an experience. While we were there President Bush gave a speech at the Quest Center in Omaha about 3 miles away, we got to see the Presidential motorcade- pretty cool to say the least. We ate dinner at this place called “Famous Dave’s” … It was the most delicious barbeque ever; I am willing to go back to Nebraska for seconds.
I’ll be on the East Coast for about a month to a month and a half before I can come home for a short visit again. My Birthday is coming up-March 10th, so I’m hoping to be in California.
I have a full plate this week with doctor’s appointments, and on February 21st, I have a PET scan; this will conclusively tell doctors exactly how my body has responded to the MDX / CD-30 clinical trail.
Please join me in prayer for the results of this scan to be favorable.
Fighting 2 Win,
-Alese