I’m Homesick…
My Dad flew in at 6:00 this morning, just to be at my appointment (Dad you’re awesome)… I asked Dr O. if there was a possibility that I could move back to LA, and still remain under his treatment and care. He said, I can, but there was some concern that all the traveling to and from coast to coast might be too stressful on my body. I ask for your prayers in making this decision. I miss my family, friends and the weather! I miss Lola. However, the bottom line is, I’ll go wherever God wants me.
I had a very scary experience the other night; I had an allergic reaction to a medication, so, I went to Urgent Care at Sloan Kettering. At first, I felt a little numbness right under my ear, and then it spread to the left side of my face, then my whole face and my neck, then my arms and my legs, it was really scary. It felt like I had gone to the dentist and she put Novocain everywhere! They figured out what it was and I went home a few hours later. I am thankful that it was not worse. The cup is always half full and never half empty.
I am starting a new clinical trial on Monday. Dr. O. is the National Chair for this trial, so I know I’m in good hands. After my checkup with Dr. O. was over, I sent to the lab and had a bunch of tests run to make sure that body can handle the regimen The drug used in this trial is a protein inhibitor, which means that it has a very low toxicity. So, I won’t lose my hair, and I shouldn’t get too sick, but this drug could be the one that could bring remission. We don’t know, and that’s why they want me to try it. I don’t remember the scientific name, I put that next week
The regimen is 5 days on, 11 days off, 5 days on, 11 days off, and so on… I’m looking forward to this trial, it shows great promise and Dr O. has kept his end of the deal by promising that I won’t lose my hair. The other day somebody referred to me “that girl with the long blonde hair” I was ecstatic! I don’t remember the last time someone commented on my “long blonde hair”. Thank you to the woman who made my day.
When Shallyn and I were flying back to the East Coast this past December, there was a girl sitting across from us on the plane. Shallyn and I were talking about scheduling and such and she heard us say Sloan Kettering. She whipped around and said, “You go to Sloan?” I confirmed what she heard, and then she said, “I volunteer there. I had cancer when I was younger.” She then proceeded to tell me that she had Hodgkin’s! There was an empty seat between Shallyn and I, and I told her, “You have to come sit with us!” She did, and we talked the entire flight and time went by so fast. Her name is Abby, she’s five years in remission and such an inspiration to me. See, everything happens for a reason. I’ll post more pictures soon, I promise! Thank you to everyone, for all of your prayers and support!
Fight 2 Win,
-Alese
I had a very scary experience the other night; I had an allergic reaction to a medication, so, I went to Urgent Care at Sloan Kettering. At first, I felt a little numbness right under my ear, and then it spread to the left side of my face, then my whole face and my neck, then my arms and my legs, it was really scary. It felt like I had gone to the dentist and she put Novocain everywhere! They figured out what it was and I went home a few hours later. I am thankful that it was not worse. The cup is always half full and never half empty.
I am starting a new clinical trial on Monday. Dr. O. is the National Chair for this trial, so I know I’m in good hands. After my checkup with Dr. O. was over, I sent to the lab and had a bunch of tests run to make sure that body can handle the regimen The drug used in this trial is a protein inhibitor, which means that it has a very low toxicity. So, I won’t lose my hair, and I shouldn’t get too sick, but this drug could be the one that could bring remission. We don’t know, and that’s why they want me to try it. I don’t remember the scientific name, I put that next week
The regimen is 5 days on, 11 days off, 5 days on, 11 days off, and so on… I’m looking forward to this trial, it shows great promise and Dr O. has kept his end of the deal by promising that I won’t lose my hair. The other day somebody referred to me “that girl with the long blonde hair” I was ecstatic! I don’t remember the last time someone commented on my “long blonde hair”. Thank you to the woman who made my day.
When Shallyn and I were flying back to the East Coast this past December, there was a girl sitting across from us on the plane. Shallyn and I were talking about scheduling and such and she heard us say Sloan Kettering. She whipped around and said, “You go to Sloan?” I confirmed what she heard, and then she said, “I volunteer there. I had cancer when I was younger.” She then proceeded to tell me that she had Hodgkin’s! There was an empty seat between Shallyn and I, and I told her, “You have to come sit with us!” She did, and we talked the entire flight and time went by so fast. Her name is Abby, she’s five years in remission and such an inspiration to me. See, everything happens for a reason. I’ll post more pictures soon, I promise! Thank you to everyone, for all of your prayers and support!
Fight 2 Win,
-Alese


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