Alese Coco's Journey through Hodgkins Disease

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Thursday, October 26, 2006

First Week of SAHA…

I started SAHA a week ago Tuesday and it’s taken a little getting used to…

This drug has really caused me to be fatigued and for the first five days on SAHA, I slept 18 plus hours a day. To be honest, I really didn’t see that coming. Dr. Kirschbaum (Dr. K) prescribed me this awesome drug call Provigil and I’ve got energy again. I woke up a few days ago, and I realized that I haven’t left the house in a week, which instantly gave me “cabin fever”… So, I grabbed my keys and drove around for a little while, and then I went to the beach and watched the sun rise, it was such a great feeling.

I get fourteen days of SAHA and then I get 7 days off… One very cool side affect of this drug is weight loss and I’ve dropped 10 pounds in nine days. Thank God I gained a little bit of weight before I started SAHA. I started feeling back to normal on the 7th day. (p.s. - if you have written me and I have not written back, I promise, I write you back by the end of the weekend)

Dr. O is in California this weekend, he’s giving a speech at a lymphoma conference in Los Angeles, I’m not going to the conference, but our family is taking him to dinner on Saturday evening. I am so excited to show one of my favorite New Yorkers the best of Southern California.

Thank you for your continued prayers.

Fight 2 Win,

-Alese

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