Headed Back To NYC…

I’m heading back to New York early tomorrow morning… I’m taking a commercial flight and I have to be at the airport at 5:00 a.m.

My friend Rebecca is coming with me, we’re going to spend Sunday night in the City. As of this writing, I don’t know if we’re going to stay in Greenwich Village, or on the upper east side of Manhattan. My Dad told me he’d have it sorted out by the time I land. I see Dr. O. Monday morning and will receive my second round of GND at noon. After treatment, we’re going to head to Madison and I’m going to recover for a couple of days before coming back to California.

I’ve been feeling good lately, it’s been awesome to be home in-between treatments; I’ve had sooo muuucccch fun this last two weeks. I’m trying to live life in moderation, stamina is still a problem and I can only go for so long before having to rest, but I’m getting better and I am gaining strength.

I want to thank everyone who came out to the Comedy & Magic Club on Wednesday night, we had a great time and it was fun reconnecting with many friends that I haven’t seen in several months. I really need to say thank you again to my friend Mike Lacey for making this evening possible… You’re the best!

Thank you for the continued prayers and support.

Fighting 2 Win,

-Alese

Home In The Sun & Surf…

I’m on my way home for Easter… I had my first round of GND late Monday (4/10) afternoon and I arrived back in Madison around 8:00 p.m. I had a great night sleep and I’m feeling good with the exception of the persistent itches; GND has no radical side effects (i.e. hair loss, vomiting, etc.) I should be able to life live at a fairly normal pace. Dr. O. feels the itching will go away within the next few weeks.

I’m really getting into aviation lately, probably because I’m flying so much, but, I’ve never really paid attention to business jets before, but now when I see one, I can tell the make and model. Today, I’m flying on really, really cool jet called a Falcon 2000. Unbelievable! We’re flying over the snow capped Colorado Rockies right now, just a few hours from California and I’m excited to be going home.

Originally, I thought I’d be in home for six days; however, I’m not going back to New York until the 22nd… My friend Julia is getting baptized on the 22nd and I want to go and support her. I have treatment on the 24th, back to California on the 25th and Comedy & Magic Club on the 26th. Hope to see you there.

Thank you for your prayers, I appreciate your love support more than you’ll ever know.

Fighting 2 Win,

-Alese

Mixed Bag…

The PET/CT scan I had yesterday came back with mixed reviews….I had an appointment with Dr. O’Connor a few hours after the scan was completed and my parents were able to join in the appointment via wireless teleconferencing, technology is a great asset.

Some of the cancerous lymph nodes in my chest have reduced in size and a couple had very minor growth. Even though these nodes are relatively small, they’re going to blast me with 12 rounds of GND. Dr. O. wants the HD to achieve some remission before participating in future clinical trials. This will allow Dr. O to manage the HD without the nagging HD symptom of itching that I experience. Thank you.

For me, this trial has been good… For the most part, the HD remained fairly stable and I’ve been able to live life without incident. And, in the process, I’ve lost a few pounds, I can’t ever complain about that. I have a couple of tests on Friday that are part of closing out the trial and I’ll receive the first round of GND on Monday, April 10th.

I’m flying home on the April 11th, I’ll be home for six days. I want to thank the good people at jetBlue Airways and my awesome friends at CAN for all the help with flights. Vicky, Darcy, Bonnie and the CAN crew, you’re amazing people. Mr. Neeleman, Isemma and jetBlue Airways, thank you, I appreciate your generous support.

Fight 2 Win,

-Alese