Alese Coco's Journey through Hodgkins Disease

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Saturday, September 30, 2006

Wait Mode...

I've been delaying this post because I wanted all the facts...

I'm in New York right now, I arrived late last night, I get scanned on Sunday afternoon and I see Dr. O on Monday, I will post a new journal entry on Monday night.

Fight 2 Win,

-Alese

Sunday, September 24, 2006

Okay! Since it's been a while from the last time that I posted pictures, I posted some from right before I went to the city too! Enjoy!

Brandi and I at the Kelly Clarkson Concert!



























We love Kelly- I swear we sang every song- she was SO awesome.




















We made t-shirts- her's said "MISS INDEPENDENT" and mine said "I HAVE HAZEL EYES" because my favortie Kelly song is "Behind These Hazel Eyes" and I do.











We were so excited to be there.










I had to throw one picture of her in there. (She is my baby)








We're about to leave but we had to snap a shot right before embarked on our adventure.




























It's like a 6 hour flight, but it was fun.






























Caught in thought.










Cruisin in a taxi!




















The Statue of Liberty



















On our way to Ellis Island!

















We were brave and took the subway- (it's not that bad)





This was at a gorgeous church right in between Wall Street and Ground Zero




















This is in the back of the church, I think it's art- Aaron thought it was a jungle gym











































Times Square- my favorite stop in the city!















The tripple threat, Abby, Alese & Aaron!


















The Lovely Miss Abby














Tired- on the train, on our way back to the city from Madison, NJ

Thursday, September 14, 2006

A Little Confusion & A Lot of Antibiotics...

I am sick... I have a nose that thinks it's a broken faucet and Rudolph the Red Nosed Reindeer at the same time. And, apparently my body thinks that if it coughs enough, world peace will occur... however, as sick as I am, I'd rather be in bed because of a cold rather than chemo; which was cancelled today because of all the yuckiness.

Here is where the confusion comes in... Today, was supposed to be my last day of GND chemotherapy and then I supposed to start SAHA, but doctors are debating whether I'm going to receive the last GND or not. The sense of urgency comes from City of Hope because the SAHA trial is supposed to close soon, and it's important I get in on it! However, Dr. O is in Europe giving a lymphoma speech and he, Dr. Popplewell and my parents cannot talk until Monday. But, I know that everything happens for a reason, so I'm not stressing out about it.

I'm in the process of revamping this site and as I was doing all my "homework" I came across a journal entry that I wrote in February of 2006, this has to be my all time favorite entry! So, for those of you who have not seen it, I'm reposting it. Enjoy!

Fight 2 Win,

-Alese

P.S. - My cousin Aaron came through with the New York pictures, which I’ll post next week.

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My Favorite Post… Originally Posted, Tuesday, February 28, 2006

No More IV Pole! I'm Free...

While I was in the hospital, it hit me that the only thing I write about is chemo and hospital stuff. So, this update is going to be a little different, I’m going to share a little more about myself and let you get to know me better…

My faith is so important to me, my family comes first in my life and I would do anything for them.

Some people say, “you can never be too rich, too thin or too pretty” well, I have my own variation of that: “you can never have too much faith, too much hope, or smile enough” I would rather try in find the positive in any situation, rather than dwell on the negative.

I definitely have times when I feel low or sad, but I don’t let myself dwell on it. I give myself a small window of time, and then I move on.

My biggest inspiration is my Grandma Coco; she was the epitome of a virtuous woman and to be half as great as she was would be an awesome accomplishment. I am also lucky to have my Grandma Smith; she's a loving, genuine soul and someone I look up to.

I love school, and I can’t wait to go back! I am so the kid that sits in the front row and almost always has the answers. I want to be a nurse, I’m still deciding on which field.

I love cooking and baking. I think going to culinary school would be a great experience.

I don’t get star struck by “celebrities.” I like people who stick out for all the right reasons. I detest those girls in the public eye who send the message to America’s youth that it’s okay not to have morals, values or brains. To all my special girls, I challenge you never to compromise yourself or integrity just to fit in.

I think my Dad is the funniest person on the face of this earth. My Mom, she just stuns me, she is such a woman of God and I celebrate her many accomplishments. I find my sister to be the most beautiful, and unique person I have ever encountered... and my brother has the quickest wit and more talent than any 10 year old I’ve ever met.

I refer to my dog Lola, as “my child.”

I love cars! My car blew a head gasket when I was 16 and rather than taking it to a shop, my Dad and I rebuilt the engine. Nothing bugs me more than when my car, or the car I'm driving makes bad noises. On the upside I can usually tell what’s causing the bad sound. I can change
my own brakes and tune up my own car! Swear!

I believe that life is a blessing, no matter what cards you are dealt. I also believe that most people are good… and most importantly Benedryl can fix almost anything :-)

I admit that Ashlee Simpson’s “Pieces of Me” is still my favorite song. I love music, I live alone, and I think I sing more than I talk. Whoever the person is who invented the iPod deserves some kind of award.

I love being girly, and I have a confession: I am obsessed with purses, shoes and big- no - HUGE sunglasses. I am not kidding.

I am not afraid of carbohydrates, I could live off of ice cream and popsicles, if you think I’m exaggerating, check my freezer.

My birthday is March 10th, but I don’t just celebrate that day... every year I have a countdown, and I own the month of March, it’s more like a birth month.

I am so guilty of burning CD’s with only one song.

I love infomercials, I don’t know why but they suck me in every time.

Anyone who knows me really well knows why Thursday is my favorite day of the week.

I am modest. I can’t lie to save my life. I will never ever complain about a bad hair day, if anyone complains about their hair to me, I’m so not listening.

I am still a big kid, when my siblings and I bicker, the words, “not-uh!” have been known to come out of my mouth.

...I think that covers it. At the end of the day, I am living proof that God is good even when bad things happen.

Okay, back to health stuff… I got to come home yesterday! As soon as I was admitted my Mom flew out here to be at my side and be my advocate. Thank you Mommy. I am feeling almost 100% better I just have this cough; I’m annoying myself with it. Hopefully it will go away really soon.
Other than that I’m doing okay… The only things I have encountered with this clinical trial is weight loss (see positive) and it tends to dehydrate me a little bit and give me cotton mouth. My body tends to get aches and pains when my fluids are low. I think this trial shows a lot of promise, and I’m really excited to see what’s in store. I promise to keep you posted.

Fight 2 Win,

-Alese

Monday, September 04, 2006

Happy Labor Day...

I’ve been lying low and taking it easy since I’ve returned home from New York two weeks ago. The coolest part of the whole trip was when my cousin Aaron and I went to Ellis Island and we looked up our Great Grandparents who immigrated from Italy. It was humbling to see what they went through so that not only they, but their children could have a better life.

I received GND last Wednesday, hopefully, I’ll have one more treatment next week and then I’ll have a few weeks off before heading by to the NYC for a scan. Thereafter, I will start SAHA and I’m really exited about this drug for manageability. I really want to start school again, I want to be a nurse and I'm in the process of filling out applications. I have a new found respect for high school students.

I’m also going to be giving this site a make over in the next few weeks, my webmaster for the last two years, Scott retired from managing internet sites, so I’ve hired a new Webmaster and we’re going to overhaul the entire site. It should be complete by late September or early October.

I continue to feel good… I’ve been taking Lola on walks, which by itself is amazing, because normally my dog refuses to take part in anything that requires her to do some kind of work unless it benefits her. She is such a little diva, but it’s been good for both of us and my stamina continues to improve.

Fight 2 Win,

-Alese