Oh… My… Goodness…
Thank GOD… After spending what seemed like eternity in ICU, I’m finally home… I need my family and Lola needs her Mama.
I woke up Wednesday morning March 14th and my Mom and I went to City of Hope to have a Hickman catheter installed. They put me under, after that, the last two weeks have been a complete blur.
I remember little of the first week in ICU; I was on a ventilator and was heavily sedated. I remember the first night and my Mom and Pastor Jason were with me and Pastor Jason read the 23rd Psalm to me, I remember how much peace that gave me. There were times that I felt more conscious then others, or I felt some type of consciousness, I would just tell myself “Fight Alese, Fight this Alese and do not give up.” At several moments, I knew I was near death and I told myself not to quit over and over again.
Both times, I woke up from the ventilator my Dad was standing at the end of the bed gently holding my feet… Just before they removed the tube from your mouth and throat you’re fully, fully awake and I’m looking around the room unable to talk. Dad looked at me and said, “If you can hear me, blink your eyes.” I started blinking my eyes a mile a minute; he told me what they were going to do and tried to sooth my anxiety with reassuring words. It did not help, not even close, not three miles close! I was not happy.
When I asked my parents what happened they told me they’d tell me later. I’ve had HD five and half years and honestly, I’ve seen my parents really scared twice. The first was when originally diagnosed, which initially was emotional for our whole family. The second was this past week, they were not emotional, but the look in their eyes and on their face could fill chapters. I figured whatever happened was not good and initially I thought it was HD related, but Monday morning, my Mom told me the entire story in detail and how the surgeon had made a mistake and punctured a vein when he was installing the Hickman.
I want to thank everyone who prayed for me over the last two weeks and the many Churches and Synagogues that took time out of their Saturday and Sunday services to pray for me, I am humbled beyond words that I can write and I’m moved by the unconditional love and the concern of so many people.
I get treated again Monday, Tuesday and Wednesday of next week. My parents and I are making some big decisions in the next few days and I request your prayers for wisdom in making sound choices. I’ll share them with you as things unfold and final conformations are complete.
God is doing something special and its much bigger then the battle that I’m currently waging… I feel this in the depths of my soul.
Lord, thank you for sparing my life and thank you for all the people who came to you in prayer on my behalf. Please Lord, watch over all of them and their families, and please let all of our lives exalt you.
Thank you again for all of your prayers, I am so blessed.
Fight 2 Win,
-Alese
I woke up Wednesday morning March 14th and my Mom and I went to City of Hope to have a Hickman catheter installed. They put me under, after that, the last two weeks have been a complete blur.
I remember little of the first week in ICU; I was on a ventilator and was heavily sedated. I remember the first night and my Mom and Pastor Jason were with me and Pastor Jason read the 23rd Psalm to me, I remember how much peace that gave me. There were times that I felt more conscious then others, or I felt some type of consciousness, I would just tell myself “Fight Alese, Fight this Alese and do not give up.” At several moments, I knew I was near death and I told myself not to quit over and over again.
Both times, I woke up from the ventilator my Dad was standing at the end of the bed gently holding my feet… Just before they removed the tube from your mouth and throat you’re fully, fully awake and I’m looking around the room unable to talk. Dad looked at me and said, “If you can hear me, blink your eyes.” I started blinking my eyes a mile a minute; he told me what they were going to do and tried to sooth my anxiety with reassuring words. It did not help, not even close, not three miles close! I was not happy.
When I asked my parents what happened they told me they’d tell me later. I’ve had HD five and half years and honestly, I’ve seen my parents really scared twice. The first was when originally diagnosed, which initially was emotional for our whole family. The second was this past week, they were not emotional, but the look in their eyes and on their face could fill chapters. I figured whatever happened was not good and initially I thought it was HD related, but Monday morning, my Mom told me the entire story in detail and how the surgeon had made a mistake and punctured a vein when he was installing the Hickman.
I want to thank everyone who prayed for me over the last two weeks and the many Churches and Synagogues that took time out of their Saturday and Sunday services to pray for me, I am humbled beyond words that I can write and I’m moved by the unconditional love and the concern of so many people.
I get treated again Monday, Tuesday and Wednesday of next week. My parents and I are making some big decisions in the next few days and I request your prayers for wisdom in making sound choices. I’ll share them with you as things unfold and final conformations are complete.
God is doing something special and its much bigger then the battle that I’m currently waging… I feel this in the depths of my soul.
Lord, thank you for sparing my life and thank you for all the people who came to you in prayer on my behalf. Please Lord, watch over all of them and their families, and please let all of our lives exalt you.
Thank you again for all of your prayers, I am so blessed.
Fight 2 Win,
-Alese
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