Rocky Week…
It’s been a difficult week for Alese…
Monday morning Alese woke us at 4:30 a.m. when she began vomiting large volumes of blood; we rushed her to Little Company of Mary Hospital in Torrance, which is a few miles from our home. Unfortunately, the emergency room triage nurse did not feel throwing up blood warranted immediate medical treatment and requested that Alese wait in the ER waiting room until a bed became available. I was not with them, but Paul told me it was not a pleasant conversation. Yesterday, the hospital sent Alese flowers and a note of apology.
Instead, we took her to City of Hope and thankfully the 25 minute ride was incident free. We called COH in advance of Alese’s arrival and they quickly infused her with platelets upon arriving. We later learned that her platelet’s had dropped to under 20,000 and she was experiencing spontaneous bleeding that has originated in her nose, throughout the night she was swallowing blood. After the infusion, her platelets increased to 50,000 and she was back home at noon.
Throughout the week she’s been bedridden and experienced bone pain. Early last evening, she developed a fever of 102.5, we gave her Tylenol and fluids and monitored her all night. Her fever broke a few just before 9:30 p.m. and City of Hope requested we bring her in if it spiked again. Fevers are also a symptom of HD and we don’t know if this was disease related or if she’s developing another infection. Thankfully, she slept well and this morning her temperature was normal.
Father, in these times of uncertainty we give you praise and glory for your goodness and faithfulness. We maintain our trust in you and we seek you Father as our refuge and fortress for our life. Lord, we lay our child Alese at your feet and ask you to take her and hold her close to your heart. Lord, may the beats of her heart remain synchronized with yours. Please comfort her and strengthen her, please continue to mold her life as it brings praise, glory and honor to you. Strengthen us all throughout this journey, amen.
Wednesday morning, another Hickman catheter will be installed and she will receive another round of Cytoxan and we’ll begin giving her Neupogen shots for the next ten days with the hope of collecting stem cells soon after.
We request your continued prayers,
Kathy
Monday morning Alese woke us at 4:30 a.m. when she began vomiting large volumes of blood; we rushed her to Little Company of Mary Hospital in Torrance, which is a few miles from our home. Unfortunately, the emergency room triage nurse did not feel throwing up blood warranted immediate medical treatment and requested that Alese wait in the ER waiting room until a bed became available. I was not with them, but Paul told me it was not a pleasant conversation. Yesterday, the hospital sent Alese flowers and a note of apology.
Instead, we took her to City of Hope and thankfully the 25 minute ride was incident free. We called COH in advance of Alese’s arrival and they quickly infused her with platelets upon arriving. We later learned that her platelet’s had dropped to under 20,000 and she was experiencing spontaneous bleeding that has originated in her nose, throughout the night she was swallowing blood. After the infusion, her platelets increased to 50,000 and she was back home at noon.
Throughout the week she’s been bedridden and experienced bone pain. Early last evening, she developed a fever of 102.5, we gave her Tylenol and fluids and monitored her all night. Her fever broke a few just before 9:30 p.m. and City of Hope requested we bring her in if it spiked again. Fevers are also a symptom of HD and we don’t know if this was disease related or if she’s developing another infection. Thankfully, she slept well and this morning her temperature was normal.
Father, in these times of uncertainty we give you praise and glory for your goodness and faithfulness. We maintain our trust in you and we seek you Father as our refuge and fortress for our life. Lord, we lay our child Alese at your feet and ask you to take her and hold her close to your heart. Lord, may the beats of her heart remain synchronized with yours. Please comfort her and strengthen her, please continue to mold her life as it brings praise, glory and honor to you. Strengthen us all throughout this journey, amen.
Wednesday morning, another Hickman catheter will be installed and she will receive another round of Cytoxan and we’ll begin giving her Neupogen shots for the next ten days with the hope of collecting stem cells soon after.
We request your continued prayers,
Kathy
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