Alese Coco's Journey through Hodgkins Disease

HomeAleseWhat is HodgkinsMedical HistoryHints/Tips

Monday, June 23, 2008

A Community Remembers...

I received a lot of emails over the past two weeks from people asking if we were going to update the journal…

A Community Remembers

I apologize for not posting sooner, but life has been full. About three weeks ago, Mark came home from a birthday party complaining of stomach pains… In short, he had his appendix removed. It’s kind of a funny story, so I’ll share what happened. Paul took Mark to the ER around midnight on a Saturday evening, doctors wanted to observe Mark and admitted him, Paul spent the night with him at Torrance Memorial and in the morning we switched, Paul went home to catch up on some much needed sleep and I came in to stay with Mark. Ten minutes after I arrived, the surgeon walks in… He’s looking at me like…”I know you…” I’m looking at him thinking the same thing. Then it dawns on me, this is the same surgeon that I told six years prior that I did not want him operating on Alese… It was not that he had a bad reputation, in fact he was well respected, but at the time Alese was newly diagnosed and I was not used to the bedside manners of many surgeons. I looked at him and said… “Do you remember me?” Without missing a beat he says… “Yes, Mrs. Coco.” Ten minutes later Mark was in the operating room, he spent another night in the hospital and he was released on Monday. He was sore for a few weeks, but now life is back to normal. After going through cancer, everything seems trivial.

Paul’s father Eddie had his appendix removed when he was 14, Paul had a severe appendicitis when he was 13, but they did not remove them and Mark is a few weeks away from his thirteenth birthday… Genetic.

My dear friend Deborah Ames died last Wednesday… She was a wonderful and incredibly friend to so many people. Deborah had ovarian cancer. She leaves behind her husband Cliff, daughter Nadine, and son Cliff Jr. Deborah will be dearly missed, please join me in praying for her family during these difficult days.

There are many things going on right now with the Fight 2 Win Campaign… Paul is in New York on July 17th and there is a Board meeting in Torrance on the 18th. A lot of good things are happening and there will be several wonderful announcements that will be made in the coming weeks. I ask for your continued prayer as this campaign moves forward.

Father, thank you for guiding our steps and leading our paths as we journey through life… Lord, I ask that you bring the Ames family comfort during these difficult days and fill their sorrowed hearts with peace knowing that Deborah's eternally rests in your arms. Father, we ask that you continue to guide this campaign and touch the lives of so many battling Hodgkin’s Disease.

Blessings,

The Coco’s

Monday, May 05, 2008

One Year Later…

Without question, this has been a difficult twelve months and it’s hard to fathom that a year has passed…


There is not a day, not an hour, not a span of five or ten minutes that goes by that we do not think about her.

I should clarify, by no means is there a 24 hour crying fest going on in the Coco household. Ninety percent of the time our thoughts are positive as we reflect on Alese’s life with joy. However, she’s always at the forefront of our thoughts and we miss her more than words can say.

May 7th will be spent quietly, we’re staying together as a family, no one is going to work or school… We’ve asked our family and some friends to join at her graveside for a private service. This is the first time any one from our family has been to her graveside since her burial.

We request your prayers during through this difficult day.

The Fight 2 Win campaign has begun… We’ve received formal written notification from the IRS, awareness and fundraising activities will begin shortly. The site will officially be launched and active on May 7th, if you have a moment, please visit www.fight2win.org, on or after May 7, 2008

We have many, many friends who continue to battle Hodgkin’s Lymphoma and we ask you to pray from them and their families. We understand what these families continue to endure and we ask for God’s healing hand and mercy to touch their lives.

Blessings,

The Coco’s

Tuesday, April 15, 2008

Blood Drive…

Alese’s dear friend Krissy Baird has organized the Alese Coco Memorial Blood Drive... All donors will receive a coupon for a pint of Baskin Robbins ice cream. If your available, please join us for this worthy cause.


Alese & Krissy Baird

The drive will be held at:

Saturday, April 26, 2008
Journey of Faith 1243 Artesia Blvd
Manhattan Beach, CA 90266
9:00 am – 3:00 pm


If you have any questions, or to book a specific time, please contact Krissy Baird at: k.baird@yahoo.com.

Blessings,

The Coco's

Tuesday, March 18, 2008

Waiting...

As of yesterday, we're still waiting for written conformation from the Internal Revenue Service.

As previously mentioned, we've received verbal conformation. However, until we have written conformation in hand, we will not conduct any Fight 2 Win Campaign business.

Blessings,

The Coco's

Monday, March 10, 2008

March 10, 2008

Today would be Alese’s 24th birthday…

We’ve spent the day at home together, and earlier in the day we replanted the memory garden with purple, pink and white flowers. It’s been a quiet day and our plans are to keep it just that… quiet.


We’re remembering, reflecting, smiling, laughing and crying. This is a day filled with a host of different emotions, I should add the good far outweighs the bad.

We ask for your continue prayers for Jennifer Willey, along with many of Alese’s other friends who continue to battle Hodgkin’s disease.

We’ll post additional information about the Fight 2 Win Campaign later this week.

Father, comfort our hearts today, in all we do please allow our lives bring glory to You. We ask that you continue to comfort Jennifer Willey during these difficult days, bring joy to her heart and peace to her soul.


Blessings,

The Coco’s

Wednesday, March 05, 2008

A Small Favor…

On several occasions Alese asked for help for one of her friends in the text of a journal update…Whether is was for prayer or requesting that people get genetically tested for a bone marrow match.

In this case, it’s for one of Alese’s dear friends Jennifer Willey… Jennifer is 28 and lives in Maine, she is a Hodgkin’s survivor; however, Jennifer underwent a bone marrow transplant and as a result she has chronic Graft vs. Host disease, this is when the body rejects the donor cells. This is a very bad scenario and there is no cure.

I’m requesting that you do three things…. First, pray for Jennifer and her family. Second, please go to her website (copy and paste this link) at: www.freewebs.com/jenniferwilley/index.htm and inundate her quest book with encouraging words. Third, forward this request to a couple your friends and ask them to do the same.

Jennifer is a warm, courageous person and your encouragement will help. Just click on the Sign My Guestbook link.

Father, I ask you to put your hand on Jennifer... Bring her comfort, please take away her pain. Father, heal her body, strengthen her family and bring joy to her family and their home during these difficult days.

Blessings,

The Coco’s

Thursday, February 21, 2008

Finally…

We received some welcomed news …

Yesterday afternoon, Michael Oberman’s law office; Kramer Levin Naftalis & Frankel received verbal conformation that the Internal Revenue Service has granted the Alese Coco – Fight 2 Win Inc. 501(c) (3) exempt status. Sometime within the two weeks we’ll have written conformation.

The fight2win.org website is complete and will be up and running the day written conformation is received.

Please join us in prayer that God’s hand will continue to lead this campaign and that the efforts will lead to a cure for this very misunderstood cancer.

I’ve included our family holiday picture, this was taken days before Paul’s accident, I’m still mailing cards out and I apologize to our friends and family for the delay. We ordered 700 cards and I’m hoping that we don’t run short. Alese is in the picture, you can enlarge the photo by clicking on it and you'll see her image on one of the ornaments.


Paul is still recovering and although he’s returned to work full time he continues to battle significant discomfort.

Father, we ask that Your mighty hand to guide the efforts of this Board of Directors, scientist and researchers. Give them wisdom in their decision making processes. Father, we lift up our many friends to you who continue receiving treatment for recurrent disease, Lord, comfort them and their families, give them peace during these turbulent days and fill their hearts with hope. Father, help us find a cure.

All our love,

The Coco’s